Learn more about PWS

Was your child or loved one recently diagnosed with Prader-Willi syndrome? Thanks to FPWR, a lot of exciting new discoveries are being made about PWS!

Prader-Willi Research

FPWR has awarded over $2 MILLION DOLLARS in research grants. Read the latest on PWS research from the chair of our Scientific Board, Theresa Strong, Ph.D.

Get Involved

There are many ways that YOU can get involved with the Foundation for Prader-Willi Research! Make a donation... hold a fundraiser... advocate for important PWS legislation... join our Yahoo! group

Rachel's Blog

What They Don't See...
Rachel Tugon , 16 weeks 6 days ago

I pulled weeds today. It's one of my least favorite things in the world to do, but the...
That's just part of it!
Rachel Tugon , 34 weeks 1 day ago

Spring is my favorite season. The only problem with spring in Kentucky is that it...
the BIG and the small....
Rachel Tugon , 1 year 11 weeks ago

FPWR is, and always has been, about BIG ideas. We came together years ago with BIG...

Research Blog

PWS-InnoCentive Research Challenge is Live!
Theresa Strong , 5 weeks 2 days ago

Here's a blog from FPWR Board member Shawn Johnson about the "PWS Research Challenge: Advancing...
Oxytocin as a promising potential treatment in PWS: An opportunity to help advance the next step
Theresa Strong , 8 weeks 1 day ago

...

Web resources for learning about genetics and translational research
Theresa Strong , 8 weeks 1 day ago

Even if you never thought of yourself as a science nerd, it’s worthwhile for parents of children...